Ruby Nation

Ruby Nation
Ruby Nation: The Webcomic
Showing posts with label asan. Show all posts
Showing posts with label asan. Show all posts

Monday, April 9, 2012

Autism ACCEPTANCE Month: Fuck Your Awareness


Since it's Autism Acceptance Month (a rewording of Autism Awareness Month, from neurodiversity proponents who want to take the month back), I wanted to explain what Autism Acceptance means to me, and what I hope for the future of me and other autistics I know and love.

Autism Awareness is a term used in the same vein as Breast Cancer Awareness, Kony 2012, and other "slactivist" campaigns. It means being involved only so far as sharing a link on Facebook or buying a shirt. It means endorsing a superficial understanding of the issue, but not actually trying to understand what it means (especially for the people directly involved). It may be better than being completely oblivious, but it's not enough. Where "Autism Awareness" is concerned, it's especially troubling because it speaks of the disability in the same vein as a terminal illness. The autistic person then is reduced to an object to be pitied, with the condition treated as a bogeyman that captures the "real" person underneath, rather than a factor that influences their larger individual personality.

Autism Acceptance means actually understanding that autistic people, and for that matter other people who aren't physically or mentally normal (re: everyone), are simultaneously influenced by their conditions but not defined by them. It means looking at such differences as a part of life that can't be erased, no matter how much money we pour into medical research for a "cure". It means trying to understand and negotiate with people who have different behaviors, and see what they can contribute to society on their terms.

In a world of Autism Acceptance, people on the spectrum will be able to find work based on their talents, not their disabilities. Autistic celebrities will not just be people that promote themselves for "overcoming" autism, but people with actual occupations as well. The world of Autism Acceptance will be a world where we have openly autistic doctors, teachers, scientists, politicians, athletes, journalists, artists, CARTOONISTS, and others. As Ari Ne'eman (IIRC) puts it, we'll have fewer professional autistics, and more autistic professionals.

In a world of Autism Acceptance, neurological disabilities will not be treated as an inherent stigma. The R word will be treated as hate speech, just like the N word or the other F word. "Don't be so autistic" won't be treated as a colloquial insult, and autistic people who behave like total assholes won't reflect on everyone on the spectrum. The likes of Christian Weston Chandler will be treated as a reflection of nothing but internet weirdos.

In a world of Autism Acceptance, neuro-atypical characters will abound on television and literature and be acknowledged as neuro-atypical. They will come in all shapes and sizes, not just the stereotypes of the inspirationally disadvantaged, the special needs morality pet for the martyr parents, or the autistic sociopath. We'll no longer need to make do with diagnosing fictional characters like Reed Richards or Hal "Otacon" Emmerich who probably fit the criteria.

In a world of Autism Acceptance, discussion of autistic peoples' handicaps will be focused on practical accommodation, not fanciful cures. Discussions about the "autism epidemic" and its causes will be dismissed, inconsequential compared to the people here right now. Instead of talking about sweeping, badly-researched gestures like gluten-free diets or chelation therapy, treatments will try to stick to the individual and how to treat their specific symptoms, not the "bogeyman" of autism.

In a world of Autism Acceptance, no moral ambiguity will be put into debates over news stories like the murder of George Hodgins by his mother. The focus will be on the victim, whose life was tragically cut short by the person he should've been able to trust the most. There will be no sympathy given to the mother who murdered him, because no matter what difficulties she had raising a special needs child, nothing can excuse taking an innocent life. The caregivers who murder their charges (and this is way too common) will be treated as that-- murderers, the likes of whom can and will burn in hell.

Finally, in a world of Autism Acceptance, the kids I work with at my residental facility day job will see all of these things happen, and be able to navigate a world even slightly less harsh and narrow-minded.

Saturday, November 7, 2009

Cartooning for a Cause: Autism Speaks and Burrito Bob



On a more serious note than my usual blog discussions of superheroic disabilities and PR-enhanced goblins, I was able to use my cartooning abilities towards a cause I believe in.

The neurodiversity blogger abfh wrote a scintillating essay on the response shown by Autism Speaks supporters to civil protestors. For those who don't know, Autism Speaks is an organization devoted to speaking for autism and Asperger's-- if you consider autism a disease that will prevent your child from ever being normal, functional, and happy. They have a lot of support and very deep pockets, and they use it to create awareness- but towards the end of treating autism as a childhood epidemic, and working towards a cure. Their slogan involves " solving the puzzle ", as though a child with cognitive differences is inherently incomplete and needs to be fit together into a preordained form more in line with the social contract.

In a fair world, these people would be treated with the same amount of dignity and respect ( by logical people, at least ) as those camps that try to " pray the gay away ". This is not a fair world, so Autism Speaks has gained a lot of notoriety. They even got director Alfonso Cuaron to do a PSArepresenting Autism as a big scary voice over. They take the understandable desire for parents who want their child to succeed and warp it into bigotry against diversity. Worse, they claim they can speak for autistic people, including autistic adults ( who they pretend do not exist ).

As a person with high-functioning autism, who has had plenty of experience living with difference and the stigmas attached and doesn't want to see that imposed on anyone else by a big company with celebrity support and dubious science, I can speak. And here are the things I say in response...

1.) I'm not going to ever be cured. Even if you developed a pharmaceutical solution much like the mutant cure in X-Men 3, I'd still have all the knowledge and experience that I've gained as a neuro-atypical person-- and I wouldn't just assimilate. Having that identity is just as significant as the neurological quirks that caused it, so if you want to cure me, you'd be better off using your funds to make autistic-hunting Sentinel Robots.

2.) I don't think that people who think differently should be stigmatized by disability. Nobody, even if they function at a very low level, is useless to society. Everyone has something to contribute, and the contributions of a " classic autistic ", the kind who apparently can't live an adult life without Autism Speaks' intervention, give far more than bigots trying to impose order.

3.) The things that have helped me be able to function as well as I do ( which is far from perfect ) came from the love and devotion of my family, my teachers, my friends online and off, and my partner. To know that I am appreciated creates a much better framework for improvement than subjecting children to various medical/behavioral treatments.

4.) Your voice-over PSAs don't speak for me, but Alfonso Cuaron speaks for you. When your opinions are represented by the director that took the third Harry Potter book and made it a pointless, pretentious display of special effects artistry that make The Robin Sparkles Films look like Orson Welles' works, you are by default made of Fail.

Okay, ending rant due to the personal stakes. But the bottom line is this...abfh mentioned an Autism Speaks supporter throwing a burrito at a protestor, in a display of characteristic reasoning ability. She asked for someone to design a mascot around that theme, with a dollar sign attached to characterize the size of their pockets and the stakes involved, so thus I put together my take on Burrito Bob. It's not the best design, and it does look very stupid. But that's the role of satire, isn't it? For all their faux-caring about the disabled children, an organization putting out a bigoted agenda deserves to be treated with all the dignity of an anthropomorphized piece of lard and grease.

Thank you to abfh for putting up the sketch, and for everyone speaking out for autism and disability rights.